Wednesday, April 17, 2013

HOME AGAIN WITH TALES TO TELL

It feels so good to be back again in my little home on the seashore. So good to hear the rhythms and smell the aromas of Atlantic City. I am totally torn between New Jersey and California. I have so much love in both places and also in Oregon and Iowa that wherever I am there seems to be a lot of love and joy.

We returned to Atlantic City on Sunday evening and I have been taking a couple of days to sleep and get my strength back. But I have been itching to write to you for two weeks and tell you all of the news.

William recovered well from his surgery and the doctors here and at CHOP (Children's Hospital of Philadelphia) in Philadelphia will be caring for him from now on. It is anticipated that William will have to have another operation to close the other five veins going from his heart to his lungs, but he is doing well right now and they can take some time and do some more testing first. He never needed oxygen after the last surgery and although we had an oxygen condenser on the plane with us, he did not need to use it and the air trip went off without a hitch.

We were able to take William to Disneyland and he could enjoy about 90% of the rides (not Space Mountain, or Splash Mountain) but we went on the Matterhorn and almost every other ride that they have. He particularly enjoyed Star Tours, a wonderful Star Wars 4-D movie that had you moving and diving in every direction.

I took a little cart that you can rent and managed to smash into several walls, but it was the only way that I could have stood up to walking all over Disneyland in one day.

David had to spend so much money on the trip as we had to extend it a week past our original fly-home date. I have decided not to bug him about the last monies owed to the book's cover designer, & Library of Congress Number. These need to be submitted in order to proceed with the final printing of the book. But I am going to leave it in God's capable hands and when the time is right, and Dave gets his finances back in order, then the book will be published. I have a feeling that the time will not be too long.

We went to Sunset Cliffs to watch the sunset and ran into a brilliant young man, and his partner who is the cameraman, that are going to be taking a bicycle trip across America from San Diego to Vermont in a few days. They have built a little bike-trailer that holds a 5-gallon bottle of water and other supplies with a solar panel on its lid to create their own energy. They intend to travel off-the-grid as far as fuel or power goes, and you can follow their adventures by going to greenfieldadventures.org; it should be a fascinating trip.

The places we went to, and that I will describe for you over the next week, are Balboa Park and the Museum of Man with their Torture Exhibit; the San Diego Zoo; Julian Mountains and the Banner Store and out into the Anza-Borrego Desert with a stop at Dudley's Bakery; Sea World; La Jolla Coves and all the sea lions; the graves of my family at El Camino Memorial Park; barbecues with friends and family; Belmont Park and their wooden roller coaster; Sea Port Village and long drives around the city looking at places we've lived before and the hospitals where the children were born. The first week we saw Sea Port Village and Belmont Park where Willie was acting very lethargic, that first night we had to rush him to the Emergency Room at Grossmont Hospital and then have him transferred to Rady's Children's Hospital in Linda Vista off of Genesse Avenue. As that second day of the trip progressed we saw Willie struggle with breathing and have a too rapid heart beat so we rushed him to the hospital. The doctor's think that possibly the change of pressure in the airplane started his veins bleeding heavily into his lungs.

We will talk more about the vacation tomorrow and also give you some family insights. Thank you for your patience and loyalty in sticking with me through this time of lack of communication. It makes me so happy that you are still here with me.

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